All About Babesia and My Experience With This Co-infection of Lyme Disease

Babesia Fighting Lyme co-infections

Babesia Blues

Recently during a follow-up appointment with my Lyme doctor, I learned that I have Babesia in addition to my Lyme disease and Bartonella. Apparently this nasty co-infection is responsible for many of my health problems. 

I have taken various antibiotic protocols since March with little to no success for treating my Lyme disease. It seems that I have multiple chemical sensitivities and cannot tolerate most medications.

Antibiotic treatments have repeatedly made me violently ill. It is for this reason that my doctor has recommended that I try a different approach for a while. He feels that I need a slower more gentle approach to Lyme treatments.

Fast forward to today, I am two weeks into treatment for Babesia and it is kicking my rear end. I literally feel like a dump truck load of concrete has been emptied over my head. Thanks to herxheimer reactions also known as a healing crisis and a UTI that is refusing to let go of me, I am sick, sick, sick. 

But, for the first time in months I am hopeful. My new protocol is responsible for the infusion of hope that has flooded my heart.

Des Bio For Lyme and Babesia Treatments

Des Bio Borrelia/Babesia Series

The Desert Biologicals Borrelia/Babesia series is a homeopathic approach to treating Lyme and the co-infection Babesia. I am told it is more gentle than antibiotics. After being on this series for over two weeks, I can vouch for that! At least I have not ended up in the emergency room due to bad reactions.

This protocol consists of colloidal silver, liposomal vitamin C, a comprehensive detoxification kit and of course the vials of liquid that treat Borrelia and Babesia. For this particular protocol I take the silver twice a day, the vitamin C once a day and 90 drops of the detox kit per day, every third day I take a vial of the Borrelia/Babesia. 

Herxing Will Happen

I was warned ahead of time that I would most definitely experience herxing while taking this series. It has been a trial to be sure, but I can say that the herxing while it is severe is not as unbearable and scary as the herxes that I experienced while on antibiotic therapy over the ten months. 

I began this therapy with a week of detoxification. The side effect that I noticed the most while detoxing that first week was severe vertigo. I felt absolutely drunk every time I took the drops. It is 25% ethanol so that could explain a bit of the drunk feeling. Although to be honest vertigo is one of my more severe symptoms due to Lyme so I believe it is part of a herx reaction. There were several times over the past two weeks that I felt very close to just passing out, although it never happened. 

Symptoms Brought On By Des Bio Treatment

I am also experiencing a myriad of other symptoms all of which I have experienced before on some level. The pressure headaches, mind-boggling fatigue, severe joint and bone pain, terrible IBS-C and IBS-D, nausea, chest pain, muscle spasms, pin prick sensations, numbness in my hands and feet, dizziness, drenching sweats, air hunger and brain fog have all come out to play.

Hope is an amazing thing you can't put a price on it

The recurring thought is just to hang on and hope for a light at the end of the tunnel soon! 

Unlike antibiotic therapy though, there is a reprieve here and there between herxes. I don’t feel so much like I am standing on death’s door step this time around. In my mind, that is an improvement.

I have had an hour here and there when I felt a bit of relief and the thought occurred to me maybe this is working! I sure hope so! I will post updates as I am supposed to take this protocol for at least two months.

When I first bought this kit, to the tune of $300 out-of-pocket, I wanted to know what other’s had experienced during the treatment. So, I did some research and most of the responses were positive!

That is encouraging,since most people have noticed marginal improvement after completing this series of treatments. Hope is an amazing thing, you can’t put a price on it!

Babesia what is it

 

So what exactly is Babesia?

Babesia is a co-infection that often goes hand in hand with Lyme disease. It is caused by a malaria-like parasite that infects red blood cells.

How do you get it?

Babesia can be transmitted by infected ticks. This infection can also be transferred from a mother to an unborn child or contracted through a contaminated blood transfusion.

Since I have received zero blood transfusions, I have either inherited it from my mother or been bitten by a contaminated tick. 

What are the symptoms of Babesiosis?

Babesia symptoms can vary from person to person. The severity of this infection depends upon the strength of the person’s immune system that is affected. There is a very lengthy list of symptoms that often accompany both Lyme disease and Babesia. 

However, there are some symptoms that are a hallmark of this particular infection. I have experienced all of them. I will list the most common symptoms below and how they affect me personally. 

Babesia Symptoms List

Air Hunger

If I were to name one symptom that I hate the most, this would be it! I hate air hunger. About ninety percent of the time I feel as if I have a rhinoceros sitting on my chest.

I literally feel like I am being smothered from the inside out! 

For the past fifteen years or more, I have felt that I am unable to take a deep cleansing breath. No matter how hard I try, it never happens. I find myself yawning frequently, trying to get over the feeling that I do not have enough oxygen. 

It is similar to the feeling that one probably gets during a panic attack, but the drugs that help with anxiety or even asthma inhalers will not help air hunger. 

It is a terrifying feeling and one that I would not wish on anyone. I often wake up at night feeling as if I am being choked or held underwater. From my understanding, this is due to the parasites feeding on the iron in my blood. 

Air Hunger

Night and Day Sweats and Temperature Intolerance

Have you ever woke up from a sound sleep and your pajamas are totally drenched in sweat? Yes, it sounds like a hot flash, but with Babesia, you can go from being simply cold, to having chills and then be drenched in sweat in a matter of minutes.

Your body just cannot adjust to the temperature whatever it might be!

I cannot tell you how many days I have walked around my house with three or four layers of clothing on and literally feeling like I am freezing to death.

Sometimes within a span of half an hour I am both shivering and then sweating profusely. I often go to bed with four layers of blankets because I am freezing! Then, at 2 a.m. I re-awaken and I’m sweating like crazy. 

There is no comfort zone for a body that is suffering from Babesia.

One memory stands out when I think about feeling unreasonably cold. I remember one summer when we were visiting Disney World for a summer vacation, I literally walked around in my shorts and a jacket because I was cold!

Coincidence? I think not. Think about it Florida in the middle of summer, there is one word for that HOT! Yet, if I had dressed like I wanted to, it would have been in sweatpants and a coat.

temperature intolerance and babesia

Headaches

While this symptom might sound vague, Babesia headaches are often felt in the front of the head. Although, this is not always the case. Personally I experience a bit of both, headaches behind my eyes and headaches at the base of my skull which I am told points to Bartonella, another co-infection.

Pressure, unyielding pressure is the hallmark symptom of a Babesia headache, at least this has been my own experience. I feel like my head has been literally placed in a vice grip.

No headache medicine relieves this type of headache. I feel like my head will implode when a Babesia headache flares.

Feeling Crazy- it could be dysautonomia

Dysautonomia

Babesia wreaks havoc on your brain. There are varied symptoms that can fall under the heading of dysautonomia.

I have experienced severe insomnia, tinnitus, vertigo, balance problems, headaches, mood instability, severe anxiety related to unexplained fear and generally feeling like I am one of those bobble head dolls with the googly eyes. I have trouble focusing to read a book and even to write.

Light and sound hit me like a razor blade. I cannot tolerate crowds. Being in a crowded place is massive sensory overload, I just cannot handle it anymore. Brain fog is my constant companion.

It literally makes you feel like you are crazy. These are just a few manifestations of dysautonomia, I could go on and on for hours. 

there is no comfort zone for a body suffering from babesia

Heart Palpitations

My doctor is one hundred percent convinced that Babesia and Lyme are in my heart. Basically saying that these are the root cause of many of my heart irregularities and problems.

I have been told that I have left bundle branch block, thickening of my heart, high blood pressure, low blood pressure, heart murmurs, tachycardia, enlarged heart, mild pulmonary hypertension, and irregular heart rhythms also known as PVCs.

I have tried various medications over the years to no avail, nothing works. 

Insomnia

I doubt I need to explain this one, but I will anyway.

This one melts down two ways, either defined as unrefreshing sleep or no sleep. Think “many moons without sleep,” yes this is me EVERY SINGLE NIGHT.

I can go to bed completely exhausted, yet I will lay awake and stare at the ceiling the entire night. If you were to wager on this, I could offer a money back guarantee as this happens so regularly.

It is guaranteed if there is a bed available, I will not sleep. Unless of course, it is 8 a.m. and time for me to get up, then yes I will sleep like a baby.

Lyme and co-infections mess up your circadian rhythm. It is against the law to have Lyme and Co.’s and get sleep of any sort. 

Lyme and coinfections mess up your circadian rhythm

Unexplained Fevers

At least eighty percent of the time, I walk around with a low-grade fever. There is no explanation for this with the exception of Lyme and co-infections.

At best I feel like I have a constant chill at worst I feel like I have an ongoing flu. It is no fun.

Unexplained Bruising

Every time I turn around, I have a bruise pop up somewhere on my body.

I can barely bump up against something and it looks like I have been beaten with a baseball bat. Most of the time I look like I have been in a wrestling match with a heavy-weight champion.

Yet another symptom of Babesia.

Babesia Drunkeness

Babesia Drunkeness

Basically this goes hand in hand with vertigo for me.

You feel drunk even though you have not touched a drop of alcohol. I suppose this falls back to head pressure and vertigo. 

For me, I feel completely unsteady on my feet. I often picture one of those pirates holding onto his bottle of rum, swaggering around yelling, “Arrrr, Matey.” 

Yes sir, that is me, minus the rum of course. Most days I feel like a drunken sailor or at best a tipsy bar maid.

Muscle and Joint Pain

With both Lyme and Babesia there is excessive inflammation in the body.

The bottom line is you have pain and lots of it. This is not your normal average aches and pains. This is the kind of pain that grabs you by the throat and says, “Listen here, I am in charge!” 

This pain radiates so deeply that you feel like you have bone rot. If there is such a thing, I think Lyme and Babesia mimic it perfectly.

Neuropathy

I experience a lot of numbness, tingling and burning pain in my hands and feet. I am told this is a classic symptom of Babesia and Lyme.

Foot drop has become a regular occurrence over the years. It comes and goes at its leisure.

It is like a ghost that lingers and if I get overheated or overly tired, it will pay me a visit.

Remember that pirate I mentioned earlier, yes, I feel like I have two wooden legs. 

Profound Fatigue

I have not faced a single day in over nineteen years without fatigue. This fatigue is all-encompassing. It takes over my life. It controls everything.

It has seriously hindered how much I can do each day. This is a hallmark symptom of Lyme disease and Babesia.

This is not simply just being tired. It is a bone deep exhaustion that drags you down. It is like having a never-ending flu.

Think of the worse case of the flu you have ever experienced and multiply that fatigue times twenty. There, you might come close to what it feels like to have Lyme fatigue. 

Babesia just adds to that, Lyme fatigue is often compared to that of congestive heart failure. 

It is the kind of exhaustion that makes it difficult to even move your big toe. It is an unavoidable brick wall that you hit each and every day when you have Babesia or Lyme.

Lyme Fatigue hits you like a brick wall

GI Problems

IBS. Yes, I feel like I have swallowed a bag of rocks and am now trying to digest them. Food has become an enemy of mine.

It does not matter what I eat. I can eat a stellar diet and still have digestive issues. 

Nothing I eat agrees with my system. It is a constant merry-go-round of IBS-C, IBS-D, GERD and nutcracker esophagus. It is never regulated. EVER.

I have literally given up any hope of ever having a normal digestive tract again. 

And there you have it folks! Babesia, at least the way I have experienced it.

All about Babesia

So now that I know what Babesia is, how is it treated?

Babesia is generally treated with anti-parasite drugs. For myself, I am trying the homeopathic approach first. 

Des Bio is where I am pinning my hopes. Only time will tell if this protocol can eradicate my Babesia symptoms. But, for the first time in a long time, I am filled with hope. 

Thank you so much for reading and until next time, be well! 

I hope your New Year is wonderful and filled with hope and light.

Valerie

 

To read more about my journey with Lyme you can visit here: 

My Lyme Story Part I.  and here My Lyme Story Part 2

 

One of my favorite companies, I love their products!

HoneyColony Silver Surfer Natural Antibiotic Serum


28 Responses to All About Babesia and My Experience With This Co-infection of Lyme Disease

  1. Such a wonderful post Valerie. Thank you for sharing a descriptive and educational piece about the journey through the colors of Babesia! I’m terribly sorry you too have suffered so with these debilitating diseases. Such a tiring and trying path we are on. Keep leaning on your strength and faith. Thank you again for sharing your journey through illness, as well as blessing us with your lovely self and gift for writing. Blessings always, Terry💚

    • ValerieB says:

      Dear Terry,
      Thank you so much! I am so sorry that you have faced this terrible co-infection too. Your friendship means so much to me. You have been such a huge encouragement to me. I hope your new year is filled with healing and hope. Blessings sweet friend,
      Valerie

  2. Regina says:

    Thanks for sharing. Btw, the only thing that helps my similar deep fatigue is Eleuthero (Siberian Ginseng). I initially took 4 drops of the tincture in 1 oz. of water each morning and at lunchtime. I now use 12 drops twice a day. I avoid taking it at night time since I have trouble sleeping as it is. Eleuthero comes in capsules too, and it can be found on Amazon.com. Good luck to you. Hope the new year brings better health to you, and to us all.

    • ValerieB says:

      Dear Regina,
      Thank you for your kind comment and for reading! Thank you for sharing about the Eleuthero, I actually have an allergy to Ginseng, so I will ask my doctor about this one. Sounds promising! Every little bit helps. Thank you so much for the well wishes. I wish you health and happiness as well. Happy New Year!
      Blessings,
      Valerie

  3. Thanks for writing about this, Valerie!! Sometimes the limelight is on the lyme itself so much that many ignore the horrors of the co-infections. Babesia is the pits. I used homeopathics to specifically target it, as well as using liposomal vitamin c, and silver from a naturopathic minded doctor. Oh boy, was that some memorable die-offs! Hoping for abundant healing for you in this coming year, Valerie! Glad you’ve had a taste of betterment already.

    • ValerieB says:

      Dear Sarah,
      Thank you so much for your kind wishes and for reading! You are so right, the die-offs from this stuff is horrific. I hope your Babesia is better! It is no fun for sure. Wishing you and yours a very Happy New Year!
      Blessings,
      Valerie

  4. Sheryl says:

    Thanks for sharing. It was a very insightful and interesting read. Hope the homeopathy treatment works!
    Sheryl recently posted…Issue #38: Coping Over the Holidays, How to Build a Human & More!My Profile

    • ValerieB says:

      Dear Sheryl,
      Thank you so much for your kind comment and for reading along. I am filled with hope for the new year and my new treatments. May your new year be filled with light, joy and love.
      Blessings,
      Valerie

  5. Priscilla says:

    Hope with all my heart that you have a very successful year with your treatments.

    Love Mom

    • ValerieB says:

      Dear Momma ,
      I love you with all my heart. I am filled with hope for the new year and my new treatments. I couldn’t do it without you and dad helping me along. Love and hugs, Val

  6. Dr. M says:

    I treat a lot of people with these symptoms; this was a great informative post. You are truly a fighter; keep up the good fight!
    Dr. M recently posted…The Science Behind Selecting The Right MateMy Profile

  7. Chronic Mom says:

    I wish I had seen such a thorough post when I was going through Babesia treatment. It was so difficult it didn’t seem like there was a lot of information. Best of luck with dealing with everything.
    Chronic Mom recently posted…How I fake my Fibromyalgia symptomsMy Profile

    • ValerieB says:

      Dear Shelley,
      Thank you so much for reading and for the encouraging words. I’m so sorry that you went through this too! It really is one awful disease. The herxing and die off with this is ridiculous. Hugs and happy new year! Valerie

  8. Lynn says:

    Dear Valerie, I cannot imagine the struggle of fighting this each day! I agree that you are a fighter! I truly hope this brings relieve and healing! What you said about not being able to put a price on hope… So very true. Without hope, what are we at all? Much love to you! Big hugs, Lynn
    Lynn recently posted…Happy New Year!! (Are New Year’s Resolutions Necessary?)My Profile

    • ValerieB says:

      Dear Lynn,
      Thank you so much for the sweet thoughts. I am very hopeful that I will begin to see improvements soon! Thank goodness for hope. Happy New Year and Much love, Valerie

  9. Julie K says:

    Valerie, great post! You described me to a tee with your symptoms. I’m sorry you are fighting these awful diseases, but you are a powerful spokesperson for our cause. Thanks for the real, painful truth.

    • ValerieB says:

      Dear Julie K,
      Thank you so much for reading and your kind comment. I am so sorry you are suffering with this too. I appreciate your support and encouragement. Blessings for a healing 2017, Valerie

  10. Katie Card says:

    Dear dear Valerie,

    You have such a wonderful attitude going through all this. I have also been there, with a lab confirmed Babesia duncani diagnosis, but I am getting better. The only really bad symptom left is the air hunger and sometimes insomnia, but both are better. The air hunger actually went away for a few weeks when I was only taking 250mg of flagyl per day. It is a baby dose, and I think the Babesia developed resistance to it because the air hunger came back after a month or so. I tried DesBio, but it did not work for me. What is working for me is bee venom therapy. My PVC’s actually got worse at first, but I also stopped the antibiotics. I cut back on the venom and slowiy increased it. I only get a few PVC’s a day now, if that. It’s like a miracle and I can hardly believe it. You can search facebook for bee venom…there are 2-3 main groups.

    Another thing you may want to address is mold illness. Please excuse me if you have already spoken of this in your blog, as I have not read all your posts yet. My personal doctor is testing people for the genetic pre-disposition to get long term symptoms from Lyme and co-infecions, and mold biotoxin susceptibilities. I am highly susceptible to biotoxins, but am getting better with binders. My doctor has found ALL of her lyme patients have particular HLA genes that keep them sick because they cannot clear the toxins (whether from lyme, babesia, mold, etc.) from their bodies. She has tested other patients without Lyme and NONE of them have susceptible HLA genes. Please check out the survivingmolddot com website for more info.

    • ValerieB says:

      Dear Katie C.,
      Thank you so much for your kindness and your lovely comment. I am so happy to hear that you have found something that helps! I have heard of bee venom, I really need to read up on it! Thanks for the information! That is truly amazing that your PVC’s are improving and the other symptoms as well. I am hopeful about the Des Bio, but so far there is no improvement for me. It is basically making me feel worse right now.

      I have thought about mold illness too! I need to discuss it with my doctor as we live in a very humid climate and I have a feeling it is a real problem for me. I will def. check out that website and bring it up at my next visit.

      I hope the coming months bring you much relief and even more improvement. Blessings and it is so nice to “meet” another fellow lyme warrior. Valerie

      • Katie Card says:

        So nice to meet you too Valerie! Your words are so perfectly descriptive and uplifting in the face of this awful chronic illness. I truly wish you the best and hope to check in with you from time to time. Not fun that it gets worse before it gets better. All the best!

  11. Kerrie says:

    My daughter (now on the other side of Lymes and others) found great relief from herxheimers by taking sarsaparilla. Made a huge difference. Wishing you great health.

    • ValerieB says:

      Dear Kerrie,
      That is so wonderful that your daughter is recovering! I have actually tried sarsaparilla, but did not have a lot of success with it. I have heard of others having found it useful as well. Thank you for your thoughtful comment. Wishing you and your daughter all the best!

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  14. Tyrell says:

    When I originally left a comment I appear to have clicked
    the -Notify me when new comments are added- checkbox and now whenever a
    comment is added I receive 4 emails with the exact same comment.
    Is there a means you are able to remove me from that service?
    Thanks!
    Tyrell recently posted…TyrellMy Profile

    • ValerieB says:

      Hi Tyrell,
      There should be an unsubscribe link on those emails. Usually at the bottom of the email.
      Thanks for asking and let me know if you have any trouble and I will try to work something out from my end.
      Sorry for the trouble!
      Valerie

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