Lyme Fatigue ~ How Friendship Helps Me Face A Life With Chronic Fatigue
The struggle with “keeping it real,” is a part of my daily life.
Since the early days of my sickness up until now, my fight with constant fatigue has been a daily battle. In recent years, it is safe to say that my fatigue runs my life. It is the ever looming presence that is there when I wake up in the morning and when I go to bed at night. It is relentless and it seems incurable.
It is present in every decision I make, like whether or not to make a quick run to the grocery store. How long can I stretch the items in my pantry? Can I manage a trip to the library or not? Maybe I’ll just re-read one of those novels I already have on the shelf. Should I or should I not invite company over for a cookout? Maybe next week I will feel more up to it, so I put it off yet again.
Can I Make that phone call to my mom or any phone call for that matter? I don’t have the energy to really carry on a real conversation. Maybe a haircut? I’m sure that I can go yet another month without that! What about weeding the garden, dusting the furniture or even just simple laundry? Simple things like cooking a meal are monumental when fatigue is involved.
Do I feel like crafting with the kids or signing them up for scouts, dance and other activities? Or my all time favorite, when my husband and I finally have a night to ourselves should we go out to dinner? Could I possibly paint and work on items for my Etsy shop? Um…usually the answer is no. I just don’t have the energy to put into those activities.
More often than not the answer is NO to every single decision.
If it is not, then it is a “variation of no.” Yes, I will make supper, but I have to wrack my brain for the most simple of recipes. Something that I can pop into the oven within 15 minutes time. I Love to cook but it has been sacrificed to the greater good of my well-being, which demands that I REST. Simple has become the order of the day EVERY DAY, not by choice but from necessity.
Fatigue the Dictator
My family, the ones that know me best, they realize this struggle. The best explanation I have found, one that describes the fatigue I deal with on a daily basis, is the “Spoon Theory.” Go to the following link to read more about this theory, It is perfect in the description of how chronic illness rules a life. The Spoon Theory While I do not have Lupus, I do have Chronic Late Stage Lyme disease, Fibromyalgia and Chronic Fatigue so it applies. Whether I want it to be or not my fatigue is as controlling as a fascist dictator.
While my fatigue does rule the day most days. There are times when I know I MUST look beyond it. Those times are when there are things on the agenda that either MUST be done or events/visits I wouldn’t miss for a “Mint of Money” or in my case a “Mint of Rest.” Today was one of those days. I had one of my dearest friends and her children come by for a visit. It was like a ray of sunshine to begin my week! She came and chatted. We did nothing but talk and sit and rest. It was wonderful. She even went so far as to bring her own lunch, bless her sweet heart. She came bearing cheerfulness, smiles and even gifts.
Friends are the flowers in the garden of life.
I do not know what I did to deserve such a wonderful friend but, I am so thankful to have her and her sweet family in my life. She brought me healthy gifts, thoughtful and helpful.
A beautiful bouquet of flowers from her very own garden!
She brought a big bottle of Bragg’s Apple Cider Vinegar which I drink in a tea every day for my health! This is really fabulous stuff!
Four wonderful bottles of Kombucha! More healthful drinks! =)
She also brought some yummy strawberries and ginger candy. Did I mention she is a special friend! All of these gifts were wonderful. But, the most wonderful gift of all was her time! She doesn’t live close by. It takes a bit of a drive to get to my house.
She devoted her whole morning to visiting with me and my family. Her visit ended far too soon. It was time well spent. I think one of the most healing things in the world is friendship. I am so, so thankful for friends. They keep the burdens lighter and the sunshine brighter.
I will close for now, until next time! My kids have enjoyed helping me decorate for the fourth of July. Who knew building blocks could be so patriotic! =) Here is one of our little vignettes. Have a happy week!